Live in the IV suite

Date: 27.02.2024 Wrexham Maelor Hospital

Time: 08:30 IV Treatment of Truxima Rituimab 100mg

Treatment: IV of Truxima Rituimab 100mg & Methotrexate 50mg

Time is now 14:09 and, as I said I'd try and blog out to you live from my treatment, more so for those who have Vasculitis or a condition who are awaiting or yet to experience any form of IV chemotherapy treatment.

What should you expect?

What can you look forward to?

But most of all WHAT YOU CAN DO to ensure both your mind and body are in the biggest, fittest sharpest place possible so you hit that treatment room like a

Fully Charged Rhino!

Building up to my first chemo treatment some 8 weeks ago (I'm on no 6 today) this being the second full day and the first in it's kind to trial what could turn out to be a cure for others in my position.

Well I was a little nervous to say the least. TB or tuberculosis has cells in most people, however if left they will happily hibernate causing no issue to your neither should they have any need to threaten to kick off. Unless you plug an IV in your arm that has kryptonite inside its nuclear like fluid that not only awakens the grouchy TB but turns it into the SupermanTB.

I've not discussed or shared as yet what my ANCA Vasculitis is as that's a whole story within itself but in a nutshell it covers everything from nerve endings, bowel issues, blood clots and losing flesh from internal organs, migraines, tinnitus but at the forefront of all that is inflation to the red blood cells and an enzyme that see my immune system as al all you can eat buffet and send it's kids out to snack on my white blood cells.

Having TB on top of that is waiting for a fatality.

So...I wanted to get that gone to get me back onto level playing field where it is ME vs ANCA VASC one on one not let him get the upper hand in a handicap or have two extra men in his team!

Enter a ballsy move ! Asking what would the treatment be for Superman version of TB, if that's all they were to treat, vs the Chemo for the ANCA VASC, vs the Steroids and Methotrexate for the VAS Blood cancer... = One very crazy strong cocktail with a 1 in 3 chance...

33% you come out paralysed for life

33% you don't come out

33% chance this may actually work Wayne

SIGN ME UP....

Stick with me and follow the outcome, ill share with you feelings, how it felt in the build up, how I go to where I am, what I have learned for other patients like me, herbal and natural cures for them horrific symptoms we have. Diet and mental tips and techniques that have led me to continue to lead a life while having this fatal illness in my back pocket at all times... granted at times iv not shown it the respect it deserves and as such I have had a type 3 heart attack and 2 t1 strokes.... but who's setting up the charity sharing the word.?? It's not ANCA VASC is it :-)